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Since then, nothing has worked for longer than a few months. At one point, Billy was on 15 pills a day at a cost of over 0 a month after insurance; we wondered if we'd have to get a second mortgage.Side effects from anti-seizure medications ranged from headaches, hostility and dizziness to mental slowness, problems with speech and potentially fatal skin rashes.In late 2011, the author took his son, Billy, for surgical evaluation at the Cleveland Clinic, where he got a surprise visit from members of the Cleveland Cavaliers.Chuck Crow/The Plain Dealer/Landov In hopes of a breakthrough, I took Billy to be evaluated for brain surgery at the Cleveland Clinic.As his father, I just want him to have an ordinary shot in life.Most especially, I hope he won't have a seizure in front of his friends.

I, too, have questions for Kill, but they're more personal. I know the fear of the father who wrote that note, but I hope to never know his pain.His meds often left him walking around like a zombie.At times, I couldn't recognize my own son — and he still had seizures.It's been like that for the past three years, when his seizures began innocently enough.He zoned out for about 15 seconds, shrugged and repeated, "I don't know." He was standing at the front door, answering a question that was never asked.




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